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Special Needs Guide
For All Your Family's Special Needs Resources
Activities & Programs | Advocacy Services | Child Care | Education/Learning Programs
| Health, Medical & Evaluations | Programs & Services | Support Groups
Activities & Programs
Cobblestone Arts Center
630 Crowley Rd., Farmington, 14425 . . . . 398-0220
www.cobblestoneartscenter.com
Cobblestone Arts Center is a non-profit Arts organization that was formed to promote visual and performing arts in the rural community. Since then we have expanded our programs to include inner-city students at-risk, persons with disabilities, impoverished youths, pre-schoolers, and senior citizens. It is also our unique mission to let Art be the force that breaks through prejudices and stereotypes, that nurtures the soul, and brings happiness to each individual.
Created By Us
Ceramics Studio, 56 Perinton Hills Mall, Fairport, 14450 . . . . 223-8210
jami@createdbyus.org - www.createdbyus.org
Created By Us specializes in painting parties for people with disabilities. The parties are designed to increase independence and comfort within the community. Our warm, welcoming and patient staff makes Created By Us a fun place to be!
DAZZLE SCHOOL of Visual & Performing Arts, Inc.
Mailing Address - P.O. Box 92233, Rochester, 14692,
Theatre Address - 112 Webster Ave., Rochester, 14609,
Adm./Classroom Address - 110 Webster Ave., Rochester, 14609 . . . . 288-0050
mail@dazzleschool.org - www.dazzleschool.org
We help those with developmental disabilities, mental retardation and mental health issues build cultural, technological, social, everyday living and financial literacy skills through arts interaction. Our non-profit school's education programs are certified by the Office. of Mental Retardation and Developmental Disabilities, Finger Lakes DDSO and the NYS Dept. of Health. We hold a recognition letter from the NYS Education Dept.
The Gymnastics Training Center
2051 Fairport Nine Mile Point Rd., Penfield, 14526 . . . . 388-8686
gtc@frontiernet.net - www.GTC-Rochester.com
The Gymnastics Training Center offers a Special Needs Program that includes year-round training & competition in Special Olympics for boys and girls of all ages. A program for the blind and visually impaired has recently been added. GTC believes all disabilities can be turned into possibilities through participation in gymnastics.
Heritage Christian Stables
Owned and operated by Heritage Christian Services, 1103 Salt Rd. (P.O. Box 200), Webster, 14580 . . . . 872-2540
info@heritagechristianservices.org - www.heritagechristianstables.org
This therapeutic riding program benefits children and adults with developmental disabilities via interaction with specially trained horses, with nationally certified instructors and experienced volunteers. Riders enjoy safe lessons which cater to their distinct needs. 13-acre site includes 65 x 120' indoor arena, mounting ramp, viewing area, 12 horse stalls, accessible tack room and 100 x 190' outdoor riding ring. Our stable is a N. American Riding for the Handicapped Association (NARHA)® Premier Accredited Center.
Inroads Yoga
716 University Ave., Rochester 14607 . . . . 585-315-1974
cheryl@inroadsyoga.com - www.inroadsyoga.com
Private teaching in the ancient holistic practices of yoga. Yoga therapy addresses life’s challenges including: ADD/ADHD, Autism, Cerebral Palsy, Downs Syndrome, Learning Disabilities and Stress. Sessions available for children ages 3 months and older - yoga enables healthy development for children of all ages. Independently beneficial and complementary to other therapies. Contact Cheryl Rhodes.
Meadows of Mendon Stables
1536 W. Bloomfield Rd., Honeoye Falls, 14472 . . . . 582-1437
amythane@msn.com - www.MeadowsofMendonStables.com
Our family-oriented stables offer both therapeutic and leisure riding activities for individuals and groups in an environment where children and adults learn to ride horses safely, build confidence and overcome the limitations of emotional and/or physical disabilities - from ground to saddle. We promote and customize programs for all populations which encourage full-family involvement (ages 5 to 75).
Pieters Family Life Center
A premier program of Heritage Christian Services,
1025 Commons Way, Rochester, 14623 . . . . 487-3500
info@heritagechristianservices.org - www.pietersfamilylifecenter.org
A health and wellness facility for people of ALL ages and abilities, PFLC recognizes each person as a unique individual with needs and opportunities for growth in multiple dimensions - physical, emotional, spiritual, intellectual and occupational. Offering affordable fitness memberships, various traditional and creative therapies, a state-of-the-art HydroWorx 2000 fitness and therapy pool, fitness classes, programs for youths with/without disabilities and more. Honored nationally as the 2009 Community Builder by the American Network of Community Options and Resources for exemplary work in bringing together people of all abilities.
Premier Cheer
1150 University Ave., Bldg. # 5, Rochester, 14607 . . . . 244-2496
www.premiercheerinc.com
Offering Special Needs All*Star Cheerleading Team program designed for girls and boys (any ages) that have developmental disabilities. No Try-Outs! Practices will be held once a week. The team will learn a 2 minute cheer routine. For more information call at 244-2496 or visit our website.
Special Olympics
1 Grove St., Suite 216, Pittsford, 14534 . . . . 586-7400
www.nyso.org
Special Olympics is an international, non-profit organization dedicated to empowering individuals with intellectual disabilities to become physically fit, productive and respected members of society through sports training and competition. Special Olympics offers children and adults year-round training and competition in 30 Olympic-type summer and winter sports.
Advocacy Services
The Advocacy Center
590 South Avenue, Rochester, 14620 . . . . 585-546-1700 / 1-800-650-4967
www.advocacycenter.com
Information, advocacy and educational workshops for individuals with disabilities and their families. Workshops for professionals to increase their effectiveness working with people with disabilities.
Berkowitz, M.Ed., J.D.
Legal Representation and Consultation,
6605 Pittsford-Palmyra Rd., Suite E-10, Fairport, 14450 . . . . 585-421-9094
For 14+ years, Joyce Berkowitz has provided legal representation and consultation to parents of disabled children in preschool through grade 12 on Special Education issues, including school disciplinary actions. She welcomes the opportunity to advocate at meetings of the Committee on Special Education. Additionally, Ms. Berkowitz represents parents at due process impartial hearings and at ALL levels of appeal.
Child Care
A Child's Love, Inc.
, 99 Main St., Scottsville, 14546 . . . . 889-0150
info@achildslove.com - www.achildslove.com
Year 'round Programming (Infant - School Age) Director Linda Podewils, PhD, has 40 years' experience as a Child Development Specialist. Our teachers (most w/Bachelor's or higher degrees) are well trained in age-appropriate activities. Subjects include Science, Mathematics and Fine Arts. Reading is essential - children read, are read to and explore Language Arts. We take pride in our child and family-friendly, cooperative learning environment.
A Child's Love, Inc.
, 99 Main St., Scottsville, 14546 . . . . 889-0150
info@achildslove.com - www.achildslove.com
Year 'round Programming (Infant - School Age) Director Linda Podewils, PhD, has 40 years' experience as a Child Development Specialist. Our teachers (most w/Bachelor's or higher degrees) are well trained in age-appropriate activities. Subjects include Science, Mathematics and Fine Arts. Reading is essential - children read, are read to and explore Language Arts. We take pride in our child and family-friendly, cooperative learning environment.
Child Care Council
595 Blossom Rd., . . . . 654-4720 or 800-743-KIDS (-5437)
www.childcarecouncil.com
The Child Care Council is your premier, community resource for quality child care, early childhood training, and Family Child Care Registration for those starting a new child care business venture. Serving Livingston, Monroe and Wayne counties since 1971. WE DO THAT!
Daystar
47 Lochnavar Pkwy., Pittsford, 14534 . . . . 585-385-6287
www.daystarssj.org
Daystar is a licensed, nursing supervised day and respite program for children ages 6 months to 3 years old. The Daystar home is specifically designed to support families whose vulnerable babies require care above and beyond the capabilities of traditional child care. Open Mon.- Fri. from 7:30am to 5:30pm.
Education/Learning Programs
Augustin Children's Center
3399 Winton Road South, Rochester, NY 14623 . . . . 334-6000
www.cprochester.org
Your child can benefit from our many services delivered at our center, in your home, at school or in the community. We offer Early Intervention Services, Preschool, Physical, Speech/Language, Occupational and Music Therapies and Individualized Adaptive Services. Call or visit our web site for information or to tour our facility.
Child Care Education Program
, 271 Wildwood Dr., Rochester, 14616 . . . . 259-5570
linda@ccepnet.com - www.ccepnet.com
Linda Podewils, PhD, Exec. Dir. - Teacher, Administrator and Instructor of Day Care. We provide courses for child care professionals, whether it is to meet your required NYSOCF Courses or for CDA Courses. Our instructors are child care providers. They know what to teach, because they come from the child care field. We qualify for funding from SUNY EIP, VESID, and work transition funding. Courses are offered on site or live online.
Discovery Toys
Teach. Play. Inspire. (Jodi Carville, Team Leader),
86 White Oak Bend, Rochester, 14624 . . . . 429-5450
jodicNRG@frontiernet.net - www.discoverytoyslink.com/jodicarville
Discovery Toys creates highly engaging toys, books, games and music that help parents and caregivers TEACH children a love of learning while boosting early childhood developmental skills. They ignite imaginations and interests of children as they grow through PLAY. They INSPIRE children to learn. NEW products! NEW vibrant identity! Schedule your hands-on experience. Earn additional income. Request a FREE catalog.
Hope Hall
1612 Buffalo Rd., Rochester, 14624 . . . . 426-5824
www.hopehall.org
Hope Hall provides an opportunity for children in grades 3 through 10 who struggle with learning in traditional classrooms to become successful lifelong learners. Hope Hall’s nurturing, non-threatening, creative atmosphere encourages students to take risks in learning and helps them reverse the cycle of academic failure.
Language Education and Play for Kids OT and SLP (L.E.A.P.)
42 Norbrook Rd., Fairport, 14450 . . . . 797-9366
kmauro@leapforkidsny.com - www.leapforkidsny.com
L.E.A.P. for Kids is dedicated to the growth and development of young children through language development, motor development, education, play and parent support. Our special educators, speech-language pathologists, and occupational therapists work with families to create individual treatment plans that foster a child's full potential for learning and relationships.
LDA Life and Learning Services
339 East Ave., Suite 420, Rochester 14604 . . . . 263-3323
info@LDARochester.org - www.LDARochester.org
Since 1963, LDA has been helping families access appropriate educational supports for their children who are struggling in school or who have learning disabilities, ADD/ADHD or other developmental disabilities. Educational consulting, tutoring, individualized transition services, college coaching, adult education, employment support, community workshops and information and referral services are offered.
Monroe 2-Orleans BOCES
3599 Big Ridge Road, Spencerport, 14559 . . . . 352-2400
jkelly@monroe2boces.org - www.monroe2boces.org
A wide range of educational opportunities are offered to expand and enrich learning for students with varying disabilities who require special instructional and support services. The latter is provided via a full range of classroom, itinerant and consultant services for almost 2,000 students from 3 through 21 years of age. Emphasis is on helping students develop their full potential, whatever their talents or needs.
Rochester Childfirst Network
941 South Ave., Rochester, 14620 . . . . 473-2858
www.rcn4kids.org
Rochester Childfirst Network (RCN) is more! A Preschool. A Place for Children with Special Needs. An After-School and Summer Day Camp for school age children. A Resource for Child Care Providers. A Leader in Early Education for over 150 years. Nationally Accredited. Serving Children 18 mos-12 years.
Rochester School for the Deaf
1545 St. Paul Blvd., Rochester, 14621 . . . . 544-1240 voice/TTY
www.RSDeaf.org
With New York State Regents-level educational programs, outreach services, and cultural support, Rochester School for the Deaf is a private, tuition-free school specializing in the education of children with hearing loss. RSD has built successful futures for deaf and hard of hearing children and their families, since 1876. Visit www.RSDeaf.org
Special Friends Nursery School
1000 Elmwood Ave., Ste. 100,
Mary Cariola Children's Center, Rochester, 14620 . . . . 271-0761 x 229
www.marycariola.org
Special Friends Nursery School is a preschool for typically-developing children located at Mary Cariola Children's Center. This innovative program continues a 60-year tradition of programming excellence for all children in a supportive environment. Classes are partially-integrated and led by highly trained early childhood specialists.
STARS Preschool - Communication Center for Hearing and Speech
380 Cedarwood Office Park, Fairport, NY 14450 . . . . 223-5090
www.communicationctr.com
CCHS is a NYS Department of Education and Department of Health approved agency that provides special education, speech, occupational and physical therapy services for children birth - 5 years of age. STARS is a preschool program for children with typical and/or delayed development - locations in Webster, Fairport and Gates.
Stepping Stones Learning Center
41 Colebrook Dr., Rochester, 14617 . . . . 467-4567
Info@steppingstoneslearning.com - www.steppingstoneslearning.com
Stepping Stones Learning Center strives to be the advocate and leader in the development and implementation of inclusionary services for children of all ages and backgrounds through the design of programs that meet the child’s ever changing needs. Classroom programs provide a unique learning environment for children with and without special needs.
Health, Medical & Evaluations
ADD Centre
Joel H. Schorr, Ed.D., NYS Licensed Psychologist,
243 Center St., Canandaigua, 14424 . . . . 394-2610
Psychotherapy and evaluation services. Neurofeedback for ADHD.
Dr. Maria Aslani-Breit, D.D.S., PLLC
Pediatric Dentistry,
1655 Elmwood Ave., Suite 120, Rochester, 14620 . . . . 427-8620
Our mission is to provide specialized and comprehensive care for children from infancy through adolescence including those with special needs in a fun, safe and state of the art environment with a focus on prevention and education for the families. Making our parents feel comfortable and confident about their child’s care is a priority for us.
Bright Start Pediatric Services
149 N. Main St., Fairport, 14450 . . . . 377-2230
www.brightstartny.com
Bright Start provides therapy services and evaluations for children ages birth to five. Services are provided in Monroe, Ontario and Wayne Counties and include speech/language, occupational, and physical therapies, special education, developmental playgroups, psychological, social work and counseling services. Our "whole child" approach generates successful results for each child and their family.
Freedom to Speak
8619 North Shore Dr., Honeoye, 14471 . . . . 229-5235
www.stuttertherapy.com
Freedom to Speak is a specialized speech therapy practice dedicated to treating people of all ages who stutter. Susan M. Cochrane owns and operates Freedom to Speak. Susan is a licensed Speech and Language Pathologist and is Board Recognized as a Specialist in treating disorders of fluency, most commonly known as stuttering. Traditional and Intensive Programs available.
Lockwood Psychological Services
1 Lockwood Dr., Suite 100, Pittsford, 14534 . . . . 383-0030
Providing psychotherapy and psychological testing for children, adults and families. Most insurances accepted.
North Coast Dental Group
1875 Hudson Ave., Rochester, 14617 . . . . 266-9220
www.NorthCoastDentalGroup.net
For over 50 years, North Coast Dental Group has served families in the Rochester area by providing general and pediatric dental care. Our focus is on helping all of our patients achieve a lifetime of optimal oral health, an important factor for overall good health. New patients are welcome!
Pediatric Therapy Services of CP Rochester
3399 Winton Rd. South, Rochester, 14623 . . . . 334-4330
www.cprochester.org
Pediatric Therapy Services (PTS) serves children from birth through age 18, working in consultation with physicians, health care providers and educational professionals. We offer Occupational, Physical and Speech-Language evaluation and treatment as well as Assistive Technology services. PTS also has a fully accessible heated therapy pool.
Rochester Hearing & Speech Center
1000 Elmwood Ave., Suite 400 - Rochester, 14620 . . 271-0680, 3199 W. Ridge Rd. - Rochester, 14626 . . 723-2140, 1170 Ridge Rd. - Webster, 14580 . . 872-8073
info@rhsc.org - www.rhsc.org
Serving Rochester for more than 87 years, Rochester Hearing and Speech Center identifies, evaluates and provides treatment for children and adults with speech and hearing needs. As a non-profit United Way Agency, its goal is giving back communication and quality of life to those it serves.
Programs & Services
Better Days Ahead Family Support Network
A Service of the Mental Health Association, 320 North Goodman St., Rochester, 14607 . . . . 325-3145, ext. 131
www.betterdaysahead.org
Better Days Ahead, a service of the Mental Health Association, provides support for families raising children with mental health diagnoses and behavioral challenges. Programs consist of Parent and Teen Support Groups, Parenting Classes, Individual Family Support, Information and Referral to Services, Educational Advocacy, and IDEA 2004 Training Classes.
Center for Autism and Related Disorders, Inc.
Service Region: Monroe County,
6 N. Main St., Suite 110, Fairport, 14450 . . . . 585-377-6590
d.rhine@centerforautism.com - www.centerforautism.com/autism_rochester
CARD diligently maintains a reputation as one of the world’s largest and most experienced organizations effectively treating children with autism, Asperger’s Syndrome, PDD-NOS, and related disorders. Following the principles of Applied Behavior Analysis (ABA), we develop individualized treatment plans for your child. For more information visit us online.
Center for Disability Rights, Inc.
497 State Street, Rochester, NY 14608 . . . . 546-7510
www.cdrnys.org
CDR provides community-based services to help seniors and people with disabilities live in their own home.
Child Care Council
595 Blossom Rd., . . . . 654-4720 or 800-743-KIDS (-5437)
www.childcarecouncil.com
SPECIAL NEEDS Programs: Enhanced Referrals, Ongoing Consultation, Confirmed Openings, Equipment for Loan and more. The CCC is a premier, community resource for quality child care, early childhood training and Family Child Care Registration for those starting a new child care business venture. Serving Livingston, Monroe and Wayne counties since 1971. WE DO THAT!
Clinical Associates of the Finger Lakes
590 Fishers Station Dr., Suite 130, Victor, 14654 . . . . 924-7207
www.clinassoc.com
CAFL knows that the development and social growth of each child hinges on the support he or she receives from family, community, and caring professionals. Our exceptional staff of highly qualified speech-language pathologists, special educators, physical therapists, occupational therapists, social workers, and school psychologists provides evaluation and therapeutic/educational services to children to meet the needs of each child and family we serve.
Continuing Developmental Services
860 Hard Road, Webster, NY 14580 . . . . 341-4600
apopeck@cdsunistel.org - www.cdsunistel.org
Founded in 1977, CDS is a not-for-profit agency dedicated to supporting individuals with developmental disabilities in Rochester and its surrounding counties. Today we provide support to more than 1300 adults and children. We offer Transition Services, Residential Services, Employment Services, Day Services, and Family Support Services.
Easter Seals N.Y.
103 White Spruce Blvd., Rochester, 14623, . . . . 292-5831
www.ny.easterseals.com
Provides assistance to children and adults with disabilities and other special needs to live, learn, and work independently in their communities.
Heritage Christian Services
349 W. Commercial St., Suite 2795, E. Rochester, 14445 . . . . 340-2000
info@heritagechristianservices.org - www.heritagechristianservices.org
This thriving, nonsectarian human services organization opened its 1st neighborhood home in 1984. It supports 1,400+ children and adults with developmental disabilities at 50+ residential home, service coordination, respite and day programs. Inducted into the NYS Office of Mental Retardation and Developmental Disabilities COMPASS program, it is identified as one of the state's top service providers for people with special needs. Innovative programs include: Pieters Family Life Center (Henrietta), Springdale Farm (Ogden), Heritage Christian Stables (Webster) and Heritage Hollow (Sixth Lake, Inlet).
Hillside Family of Agencies
1183 Monroe Ave., Rochester, 14620 . . . . 256-7500
www.hillside.com
Hillside Family of Agencies offers a range of services to help youth with developmental disabilities including service coordination, residential habilitation, family education, individualized residential alternatives (IRAs), and intensive support units. Hillside combines a commitment to youth and families with unique experience in developmental disabilities, behavioral issues, and mental health challenges.
Kirch Developmental Services Center
Golisano Children's Hospital at Strong, 601 Elmwood Ave., Rochester, 14642 . . . . 275-2986
www.stronghealth.com/services/childrens/centers/kirchcenter.cfm
The Division of Neurodevelopmental and Behavioral Pediatrics offers a wide variety of services to children and adults with developmental disabilities and their families. Programs are interdisciplinary, providing diagnostic and treatment services for the spectrum of developmental disabilities. We offer other community Outreach programs that smooth the way for people with developmental disabilities to lead active, productive lives within the community.
Ontario ARC
3071 County Complex Dr., Canandaigua, 14424 . . . . 394-7500
www.ontarioarc.org
Ontario ARC (a not-for-profit organization) is dedicated to assisting individuals with developmental disabilities and their families. Personalized services and supports promote independence, recognize individual uniqueness and value quality of life. We envision a community where people with developmental disabilities are welcomed, involved and respected. To achieve this, we live by our values, creating opportunities for individual growth, decision-making, choice and access to services.
Pieters Family Life Center
A premier program of Heritage Christian Services,
1025 Commons Way, Rochester, 14623 . . . . 487-3500
info@heritagechristianservices.org - www.pietersfamilylifecenter.org
A health and wellness facility for people of ALL ages and abilities, PFLC recognizes each person as a unique individual with needs and opportunities for growth in multiple dimensions - physical, emotional, spiritual, intellectual and occupational. Offering affordable fitness memberships, various traditional and creative therapies, a state-of-the-art HydroWorx 2000 fitness and therapy pool, fitness classes, programs for youths with/without disabilities and more. Honored nationally as the 2009 Community Builder by the American Network of Community Options and Resources for exemplary work in bringing together people of all abilities.
UNYFEAT
Upstate New York Families for Effective Autism Treatment, . . . . 585-234-1220
contact@unyfeat.org - www.UNYFEAT.org
UNYFEAT is a 501(c)3 not-for-profit organization dedicated to supporting individuals with Autism Spectrum Disorder, and their families, by expanding and enhancing opportunities to improve quality of life. Visit www.unyfeat.org for more information about our social, recreation and life skill education programs, support services and membership options.
Support Groups
2-1-1 Finger Lakes Region
, 2-1-1 or . . . . 1-877-FLNY211
www.211fingerlakes.org
24-hours a day and 7 days a week this free, confidential, three-digit phone service connect people to local call centers so that they can speak with specialists trained to provide information and referrals to human service agencies which can address their needs.
292-BABY
Administered by Monroe Community College, . . . . 292-BABY (-2229)
www.292baby.org/index.htm
292-BABY has created a community which links parents and child care providers with other professionals, existing community resources and each other. View videos on demand. Access resources. Join discussion forums. Have non-emergency parenting questions answered for FREE by phone with the help of a pediatric nurse.
Al Sigl Center
1000 Elmwood Ave., Suite 300, Rochester, 14620 . . . . 442-4100
www.alsiglcenter.org
The Al Sigl Community of Agencies was founded nearly 50 years ago in support of independent agencies working together to develop a collaborative community solution for accessible space for programs and services to bring abilities to life. Over the years it has grown (just as its independent agency partners have) to serve more people with disabilities.
The Arc of Monroe County
1000 Elmwood Ave., Rochester, 14620, . . . . 271-0660
www.arcmonroe.org
Arc provides a warm environment where individuals with mental and/or developmental disabilities exercise their unique talents through recreation, community involvement and volunteerism - with emphasis on independence, inclusion, individualization and productivity. Day Services programs promote learning. Residential, vocational and family services are available.
Arthritis Foundation
3300 Monroe Ave., Suite 319, Rochester, 14618 . . . . 264-1480
info.uny@arthritis.org - www.arthritis.org
Arthritis comes in 100+ forms. This local chapter provides information which can help you understand the complexities of this disease and make informed decisions about treatment. AF offers programs, exercise classes, seminars and presentations for children and adults. Physician location assistance is also available.
Asperger’s Support Group
Contact Beth Grier-Leva, . . . . 288-4150
This is a locally run support group for those with Asperger’s Syndrome.
The Association for the Blind and Visually Impaired (ABVI)
Goodwill Industries of Greater Rochester, Inc., 422 S. Clinton Ave., Rochester, 14620 . . . . 232-1111 or TTY 232-1698
www.abvi-goodwill.org
ABVI is a non-profit agency which helps children and adults who are blind or visually impaired to become self-sufficient members of their families and communities. Serving the Greater Rochester area and Finger Lakes region.
Autism Speaks
www.autismspeaks.org
Dedicated to funding global biomedical research into the causes, prevention, treatments and cure for Autism - as well as raising public awareness about Autism and its effects on individuals, families and society while bringing hope to all who deal with the hardships of this disorder.
Compeer Rochester, Inc.
259 Monroe Ave., Rochester, 14607 . . . . 546-8280
www.rochester.compeer.org
This non-profit helps adults and children overcome the effects of mental illness (incl. loneliness, low self-esteem and isolation) through the healing power of friendship. Programs complement therapy, include one-to-one mentoring relationships, skill-building and interim telephone support.
Continuing Developmental Services
Parent Support and Education, 860 Hard Rd., Webster, 14580 . . . . 341-4600
apopeck@cdsunistel.org - www.cdsunistel.org
This is an opportunity for parents and family members of people with disabilities to come together for support, resources, and information sharing. The groups offer networking and support, and education, through scheduled presenters who focus on a variety of topics.
CURE Childhood Cancer
, . . . . 800-443-CURE (-2873)
www.curechildhoodcancer.org
This non-profit strives to find a CURE for childhood cancer through research, oncologist and researcher training and provides emergency financial assistance for affected families.
Depression and Bipolar Support Alliance
320 N. Goodman St., Rochester, 14607 . . . . 234-8432
www.dbsaroch.org
DBSA Rochester is a non-profit group composed of people who have (or suspect that they have) depression or bipolar disorder. Free, peer-led support group meetings are held for teens, parents and adults.
Dream Factory of Rochester
PO Box 308, East Rochester, 14445 . . . . 234-0740
Rochester@dreamfactoryinc.com - www.dreamfactoryrochester.com
The Dream Factory is a volunteer organization that fulfills dreams for children diagnosed with critical or chronic illnesses. Children’s dreams are as varied as the illnesses they face. A trip to Disney World, a computer or home theatre system, even meetings with celebrities- Dreams really can come true.
Epilepsy Foundation of Rochester-Syracuse-Binghamton
1650 South Ave., Suite 300, Rochester, 14620 . . . . 442-4430
www.epilepsyfoundation.org/rochester
This organization seeks to ensure that people with seizures are able to participate in all life experiences by preventing, controlling and curing epilepsy through services, education, advocacy and research.
Flower City Down Syndrome Network
2117 Buffalo Rd., Suite 132, Rochester, 14624 . . . . 234-2345
www.fcdsn.com
Providing families with support, inspiration, and information to help individuals with Down syndrome achieve their maximum potential and become integrated into area schools, communities and businesses.
Food Allergies: Coping, Teaching, Supporting
31 W. Church St., Fairport, 14450 . . . . 264-9033
www.FACTSplace.com
This local support group provides resources, support and encouragement to families coping with food allergies and raises awareness of their unique needs. Meetings and membership are free, with donations accepted.
Future Care Planning
1000 Elmwood Ave., Suite 500, Rochester, 14620 . . . . 402-7840
www.futurecareplanning.org
This non-profit organization helps create comprehensive plans which address things like wills, benefits, health insurance, Power of Attorney, health care proxies and more on behalf of adults with disabilities.
Juvenile Diabetes Research Foundation International (JDRF)
1200-A Scottsville Rd., Suite 100, Rochester, 14624 . . . . 546-1390
www.jdrf.org/rochester
The focus of the Rochester Chapter of JDRF is on organizing fundraising events, supporting research for a cure, increasing awareness of diabetes and its complications, and reaching out to newly diagnosed diabetics and their families.
March of Dimes
3445 Winton Place, Suite 121, Rochester, 14623 . . . . 424-3250
www.marchofdimes.com/newyork
March of Dimes is a non-profit organization whose researchers, volunteers, educators, outreach workers and advocates work together to give all babies a fighting chance against: prematurely, birth defects, and low birth weight.
Multiple Sclerosis Society Upstate New York Chapter
650 South Ave., Suite 100, Rochester, 14620 . . . . 271-0801 or 800-FIGHT-MS (344-4867)
www.msupstateny.org
Providing comprehensive services to over 8,000 families dealing with the unpredictable effects of multiple sclerosis and fulfilling the national MS Society’s mission to "end the devastating effects of multiple sclerosis."
Muscular Dystrophy Association
1425 Jefferson Rd., Rochester, 14623 . . . . 424-6560
www.mdausa.org
MDA is a non-profit agency striving to find the causes and cures for 43 neuromuscular diseases while improving the quality of life of people with Muscular Dystrophy.
Noogieland
255 Alexander St., Rochester, 14607 . . . . 423-9700
www.gildasclubrochester.org
Noogieland is offered through Gilda’s Club and serves children with cancer or children with a family member who has cancer - making sure everyone gets the social and emotional support the need. Arts and activity based programs allow children to talk about their feelings as they participate in activities.
NYS Office of Mental Retardation and Developmental Disabilities
44 Holland Ave., Albany, 12229 . . . . 866-946-9733 Toll Free
www.omr.state.ny.us
The Office of Mental Retardation and Developmental Disabilities and its associated voluntary agencies offer many services to consumers and their families, including: Camp programs, Crisis Intervention, Employment Services, Referrals, Family Support Services, Housing Support Services, Family Care, Counseling, Environmental Modification(s), Recreation and others.
Pieters Family Life Center
A premier program of Heritage Christian Services,
1025 Commons Way, Rochester, 14623 . . . . 487-3500
info@heritagechristianservices.org - www.pietersfamilylifecenter.org
A health and wellness facility for people of ALL ages and abilities, PFLC recognizes each person as a unique individual with needs and opportunities for growth in multiple dimensions - physical, emotional, spiritual, intellectual and occupational. Offering affordable fitness memberships, various traditional and creative therapies, a state-of-the-art HydroWorx 2000 fitness and therapy pool, fitness classes, programs for youths with/without disabilities and more. Honored nationally as the 2009 Community Builder by the American Network of Community Options and Resources for exemplary work in bringing together people of all abilities.
Regional Early Childhood Direction Center
Monroe #1 BOCES, . . . . 249-7817
www.monroe.edu/recdc
Since 1979, this grant-funded program (through NYSED and VESID) has been supporting families with children birth to 5 years by providing free information and individualized assistance to connect them with programs and services. RECDC also provides free support for Early Childhood Development professionals by issuing technical assistance and training within 11 Counties.
Support Organization for Trisomy 18, 13, and Related Disorders (SOFT)
2982 South Union St., Rochester, 14624 . . . . 594-4621 or 800-716-SOFT (-7638)
www.trisomy.org
This network of families and professionals provides support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and related chromosomal disorders. Resources, annual conferences, literature and more.